People with dementia should be able to access information which is presented in a way which is suited to their needs. The following leaflet, produced by The Dementia Engagement and Empowerment Project (DEEP), advises on how to make information dementia-friendly in terms of style, layout and language.
Dying Matters is a coalition of 32,000 members from the NHS, voluntary and independent health and care sectors across England and Wales. Dying Matters aims to help people talk more openly about dying, death and bereavement, and to make plans for the end of life.
The website, The Art of Dying Well, features real-life stories from a wide variety of contributors and is for the dying, the bereaved, and carers (professional and otherwise). The site explores what it meand to die well, and how this is something that can help people live a happier life in the present, even in the face of terminal illness.
Watch an interview with Hospiscare patient, Kirsty about her experiences using Hospiscare’s services, talking to her daughter about her illness and preparing for the future.
For your interest and information we have placed a link here to some carers webpages developed in Ireland. This is a really helpful resource but you will notice some differences. Sometimes Irish services are mentioned which are different to ours. For example the webpages mention respite only services and they aren’t currently available here in England.
We would still recommend this as a good information source and support for carers to access directly and for our staff and volunteers to signpost carers too.
Age UK and Malnutrition Task Force (MTF) have published new guidance to help people have conversations about death and dying after the results of a recent survey found these subjects were often avoided. Click on the link below to watch their 5 minute video.
James Norris, founder of the Digital Legacy Association, examines how a patient's digital footprint is an increasingly common part of advance care planning and why it's important. This piece may help those considering how to create and manage their own digital legacy.